My Updates
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Wednesday 19th Feb In July 2017, Nixon was diagnosed with stage 4 High Risk Neuroblastoma Cancer MYCN amplified. It was discovered that the cancer was throughout his entire abdomen (from his pelvis to his diaphragm), spots on his chest, right arm bone and both thigh bones. We were told he had a 55% chance of surviving the next 5 years. He had 20 months of treatment including 6 months chemotherapy, 12 hour major abdominal surgery where he was then intubated in ICU for 4 days following surgery, two stem cells transplants with high dose chemotherapy being isolated in hospital for a month each time, 12 rounds of radiation and 7 months of immunotherapy. On top of this he had 3 ICU admissions, a number of bacterial infections in his blood, had a central line in his chest for 18 months, 33 blood product transfusions, 25 general anaesthetics, 20 months being fed through a nasal gastric tube and 289 days in hospital. In March 2019, Nixon finished his treatment plan and his scans were clear. In September 2019, Nixon relapsed. Our oncologist said that his chance of surviving the next 5 years is very little. He started a trial of combined chemotherapy and immunotherapy. The treatment is extremely painful as it attacks the nerves throughout the body. Imagine having a tooth ache but that feeling is throughout your abdomen, arms, hands, feet and legs. Because of this he is dosed up on double strength morphine/fentanyl and gabapentin. This treatment will continue until mid-October 2020 if there are no delays or complications. Nixon is at high risk of again relapsing. If he relapses again after this treatment, he will have a 0-2% chance of surviving. We simply cannot take this chance. Nixon's only hope for a cure is to get him to the Memorial Sloan Kettering Cancer Centre in New York and participate in a vaccine trial against neuroblastoma. This trial is a course of 7 vaccines over 12 months. The trial has been ongoing for over 10 years! But is not available in Australia. The purpose of the trial is for the body to make antibodies against the 2 antigens in the vaccine, those antibodies might also attach to neuroblastoma cells because a lot of each antigen is on neuroblastoma (and very little on other parts of the body). Then, the attached antibodies would attract the patient's white blood cells to kill the neuroblastoma. Stopping a relapse from occurring. This is Nixon's best chance of survival. As parents, we need to do everything we can to help our son survive. The costs associated with this vaccine trial is AU$350,000. A link to the trial can be found here. Please note that the trial states the estimated date of completion is May 2020 however I have been in contact with 2 of the head oncologists from MSK Cancer Centre and also a head researcher for the trial. All have confirmed there is no end date for the trial and they will continue registering patients after May 2020: https://clinicaltrials.gov/ct2/show/NCT00911560 Facebook: https://www.facebook.com/NixonsHopeforaCure/?eid=ARASC8KJH-JDMnfbnZkYTWcaYtlXW3pS0keNfoguU8nKqXh49FJZyYiu4vhWFTnOIc9bEjYX_b45 ShareThank you to my Sponsors
$5.15k
Jessica Pereira
$5k
Neumann Benevolent Foundation
$3k
Kahlee Townsend From Ray White
$2.5k
Janice’s Gospel Community
$2k
The Busy Group
$1,000
Rca Transfer
$1,000
Ali Martin
To Dearest Nixon, Sending all our love Aunty Betty & Ali ♥️♥️♥️
$900
Sue Kilpatrick
Love the jacket
$764
Pimpama State Secondary College
This amount is for fundraising from our market days at the college. We hope it makes a difference.
$500
Rival Ink
$500
Mel Deagan
$500
Lana Hall
$300
Corey Creed & Tiffany Jackson.
We are praying Nixon gets the help he needs. Love Corey & Tiff.
$250
Kate & Richard Vines
All the very best for your treatment, Nixon.
$250
Black Hops Brewery
We wish you well Nixon!
$200
Patch
I wish you all the best dan and family
$200
Rca Transfer
$200
Krystal Barter
I just saw this through Rare Cancers. As a parent, I can only imagine. Let’s get you over there.
$200
Rca Transfer
$200
Damien Linck
Hey Nixon.. Keep fighting little man 🦸♂️.. All the best..
$100
Amanda Mclauchlan
Sanding lots of love and strength your way
$100
Ki
$100
Wendy Beutel
Sending love and healing vibes...xx
$100
Rca Transfer
Nixon stay strong little man..
$100
The Stevo’s
Thinking of you little man !
$100
Maria Seminotti
💙💙💙
$100
Danny Cotton
Keep fighting!
$100
Ed George
$100
Peter And Janine Bartlett
You are a very brave little man, you have our support
$100
Rca Transfer
$100
Claire Jessup
Sending love to the Melvilles - good luck x
$100
Rca Transfer
$50
Lizzy B
Good li
$50
Emma Wilson
$50
David Li
$50
Scott Blackstein
$50
Rca Transfer
$50
Sonia Gould
$50
Liz Smith
Keep fighting
$50
Lizzy And Ripley
Happy 4th Birthday Nixon xxx
$50
Mel's Birthday Fundraiser Facebook
$50
Rca Transfer
Best wishes for your treatment little man!
$50
James M
$50
Lisa Stevens
We are praying for you little Nixon. You will get through this, stay strong and fight. 💓
$50
Sabrina Smeaton
You’re so strong and brave! You’ve got this Nixon, stay strong! Savannah and Sabrina
$50
Lisa Brooke
All the best little guy! Wishing you all the best.
$30
Laura Epton
❤
$30
Rca Transfer
$30
Rca Transfer
May God be with you and heal you
$30
Greg Roots
Stay positive Nixon! Hope ur pain free & heathy soon mate!
$30
Rca Transfer
$30
Nige And Joy
$30
Rca Transfer
Blessings to you, brave little boy!
$25
Lauren Campbell
$20
Rca Transfer
Praying this helps you to find a cure for this horrid disease 💕
$20
Lisa Smith
Keep fighting little man x
$20
Rca Transfer
$20
Gianni Bramanti
auguri piccolo
$20
Rachelle Chee
$20
Sarah Bradtke
Support for Nixon and Mr Blake's shave for a cure
$20
James Small
$20
Sarah Mahon
$20
Toby's Painting
$20
Rca Transfer
$20
Ana Robertson
$20
Rca Transfer
Hope all goes exceptionally well! 💕
$10
Claudine & Ben
All our love and prayers
$10
Chris Collin
Wishing you all the very best Nixon. Sending love and hugs your way little man ❤
$10
Like the kind people who donated to me before, I am paying it forward to you. Very best wishes xo